Link to a friend’s blog…

Emma’s blog. Check out the link, it’s Joshua’s buddy, Emma. Her mom took this amazing video of her during her speech therapy session! She is doing amazing!!!! Go Emma!!!!

Video 4 of Adventures in the Kidwalk

This is pretty awesome! Sissy took this one at school. He is really cruising in the beginning, but then he gets stuck and totally gives up, watch his body language! Poor little guy, Caylee didn’t know it then, but he was sick, he threw up just an hour or so later. Poor Pooh Bear!

I love the way this gait trainer moves with him so fluidly! He is getting to be a speed demon in it! I LOVE it!

Video 3 of Adventures in the Kidwalk…

The first time out in public in the Kidwalk. Josh saw every square foot of Old Navy, a couple of times over! LOL! He LOVED it and was the most motivated he’s been in it yet!!! Definitely loved having the FREEDOM to go and see whatever HE wanted to see! Way to go Pooh Bear, mama is so PROUD of you!!!!

There aint no stopping him now!

I love this picture, and have titled it Freedom!!

This is the second video of the gait trainer series. Pooh Bear is going places!

I am addicted to this laugh!

Go Joshua!

This is Joshua’s first time in his new gait trainer, yesterday at PT. It’s called a Kidwalk and made by Prime Engineering, if you want to google them.

I’ll take more video of his first real outing soon!

Joshua’s Angelman Syndrome Brochures!

Click here to see a pdf version of the full brochure.

These FABULOUS brochures were created for us by Darren Humphries, a fellow Angelman parent. Contact him at Christosconcepts@xtra.co.nz if you are interested in having a brochure made for you child. As you can see he does a fantastic job, and he’s is so easy to work with. He will send the finished brochure to you in a pdf format (a color and black and white version) and you just print it out, and as the years go by he will update for you also! Feel free to contact Darren if you have more questions for him! He has a huge heart for this work, and for helping our kids to have a voice!

I cannot wait to hand these out to people. I will be giving one to each child at church, I know they will love having these to see pictures of Joshua and to hear about the kinds of things that he enjoys doing, just like them.

Family bowling night was a blast!!!

This was Joshua’s second time to go bowling, and he definitely knew what to do this time! As soon as I got him out of his wheelchair, he started heading towards where the balls are! He has a definite preference for pink bowling balls, which is funny, because he doesn’t show this preference for pink anywhere else.

We went out to eat before bowling and I got the BEST shot of Joshua and his Daddy, Kevin.

People watched us a lot, the way we all go up to bowl with Josh, helping him out, cheering for him. Some just smile, some say how cute he is, but there was one lady next to us just had such a question on her face. I think she thought it was cool the way we all gather round him and act as if he is the *star* of our family (which he is), but I don’t think she has seen this in action much; a family out with their child with a disability, doing normal family stuff. We are happy, we laugh, we tell Joshua how awesome and cute he is. This is our life. I hope that she remembers Joshua the next time she sees another child with a disability, and presumes to feel sorry for them, or that they are less than another child. That could not be further from the truth!

Joshua LOVES shaving cream!

As you can see and hear, he LOVES this! We messed up though, by giving him way too much, because we liked to hear him giggle when it came out! He ended up eating some and getting it all over his face!!! Not good! I am sure that it has gluten in it, not to mention all the other yucky chemicals in it! So, not so much next time.

“Haaaaah”

Joshua said hi to someone yesterday!

Joshua, Caylee and I were taking a walk yesterday. We were all enjoying the beautiful weather we have been blessed with lately. I saw a couple walking toward us, and I said to Joshua ‘Joshua, say hi the people walking’, and when they got closer to us he said ‘HAAAAAAH’ to them!!!!! It was so cool! I have not ever thought to say that to him before, and I am so glad that I did!

He was so happy also, because the couple looked at him, and smiled and said ‘hi’ back! So cool!!

Joshua never fails to surprise me!!! Way to go Pooh Bear!!!